Dr Julie Barnes states in her excellent presentation at TedxGranta on “Health, Technology and Social Responsibility” that science and technology is evolving to:
- Help us to understand our personal risk of disease
- Help us to screen for diseases so that we can identify them early
- Help us to align ourselves to treatments that work (personalised medicine)
- Through information technology move us into the realm of informed healthcare
“Citizens, your health data, genomics, and the future”
Haughton Thornley Patient Participation Group and Manor House Patient Participation Group arranged the following conference for all interested persons. The event was recorded and is available here
09.00 Welcome from the Mayor of High Peak and the editor of The Glossop Chronicle,
09.10 – 09.25 Interlude 1 – “The Planet and DNA”
09.30 – 09.50 Dr Richard Fitton “HOUSE OF LORDS Report Genomic Medicine” –
09.50 – 10.10 Sheila Mills UK Biobank
10.10 – 10.30 Rob Anker “The life cycle of records”
10.30 – 11.00 Discussion – health records for citizens
Coffee 11.00 – 11.20
11.20 – 11.35 Interlude 2 “The Planet and the Holocene”
11.40 – 12.00 Julie Barnes – “The genetic landscape of diabetes”
12.00 – 12.20 Public health – “Resourcing diabetes and its’ future economic burden”
12.20 – 12.40 Julie Barnes “Testing for diabetes”
12.40 – 13.00 Citizens presenting their family histories
13.00 lunch
13.30 – 13.45 Interlude 3 “A Global health language – the International classification of diseases”
13.50 – 14.10 Glen Griffiths “Health information interfaces for citizens”
14.10 – 14.30 Margaret Rickson and Dr Amir Hannan – “Processing health data”
14.30 – 14.50 Yvonne Bennett – “Handling my family’s health care and data”
14.50 – 15.10 Tea
15.10 – 15.30 Dr Amir Hannan “Consent and a partnership of trust”
15.30 – 16.00 – Discussion – citizens processing their own health and health records
16.00 – 16.15 interlude 4 “The planet, information, sustainability and the Future”
16.15 Richard Fitton, GP “The future for global health records”
16.30 End
Julie Barnes spoke at the conference along with patients, clinicians and managers to discuss some of the critical issues we now face as individuals and people who can have access to their data as well as their genomes and what this might mean for our families and future generations and what this may mean for us and the sustainability of the planet.
Please contact Dr Richard Fitton on [email protected] for further details.